The approach to this sensitive subject is treated both through the testimony of parents and health care professionals. A subject voiced with emotion as they recall that painful period, but one which also bore the hope of a life enriched by the arrival of an exceptional being.

What is new in the way in which this document is conceived is that it gets away from the issue of medical or medical and social organisation. The sensitivity of the father of a disabled child, Olivier Raballand, and the editing of Rémy Viville highlight the concerns of health professionals and those of parents.